Hospice care is designed to provide comfort and support to individuals nearing the end of their lives and their families. However, some aspects of hospice care may not always be fully discussed upfront. Here are some things that families might not always learn from hospice providers:
Intensity of Care: Families might not realize the level of caregiving required, even with hospice support. Hospice provides intermittent home visits from nurses, aides, and other professionals, but daily caregiving typically falls to family members.
Emotional Toll: The emotional burden on the patient and family members can be overwhelming, and while hospice offers counseling and spiritual support, the depth of emotional distress can be greater than anticipated.
Symptom Management Limits: While hospice aims to manage pain and other symptoms effectively, some symptoms can be difficult to control completely, leading to discomfort that can be distressing for both the patient and their family.
For more insights, visit:
https://www.hospicecareagencies.com/article/what-hospice-does-not-tell-you